Limitless

[Skub]

Ah man,life has surely dealt you one. I'm glad for your current revival and sincerely wish this is your new normal. Dealing with bureaucracy in any form is an exercise in laying waste to the soul.When it concerns matters of health and quality of life,the frustration is magnified. The sense of urgency and desperation you feel is often not reflected by those who are paid to care. I'm not surprised you lost your cool,you did better than I could have.

Your example is a good reason for us all to adopt the 'be kind to everyone,you don't know what they are going through',perhaps more especially when posting online,when typically it's so much easier to be cruel and insulting to mere font.

Wishing you everything positive in the days ahead,Screwd,you deserve a break.

[Screwdriver]

Thank you for the overwhelmingly positive responses.

I am going to step away from the screen now and enjoy being me for a while. There will be updates and I believe I have the beginnings of a cunning plan. I managed to get some stuff done while buried in my cave. Heres an example of that and an indication where my next business enterprise may emerge.



The Aprillia is still crashed when it failed to reach Cadwell with a desperate lunge off the trailer, the XRS still lurking in the garage after shedding a brake lever going into that hairpin, the RG500 is still waiting for me to fix up my broken down old TIG (it's the exhaust system holding thigs up.

Countess other machines are also patiently waiting. I strongly suspect a one of the XT500s will be the first victim for my attention...

I honestly believe I could now get one running within days if I set my mind to it.

Laters....

[Potter]

Now the carbs are unblocked and whatever engine there is left in this old crate is being fully fuelled I won't need to stand so hard on the gas. To drag out the analogy, it's like stepping off a moped onto a FireBlade.

I can relate to that, but take care that you don't go off at a million miles an hour, do loads, then at some point (days/weeks/months) into the future you pause for breath...and fall over. There are some terms that cover this, it could even be PTSD after what you've been through, but it always gets you once the crisis has passed and you think you're ready to press cruise control.

I'm not trying to put a dampener on anything, enjoy it, just go steady and pace yourself back to normal life.

[Taipan]

I tend to not read the argumentative posts on here as its not what I come on here for, and rarely even venture into that forum, but I am aware you've been in some blinders in the past, (here, but mainly TRC)!

Anyway, I enjoy your threads and comments and normally come out wiser for reading them. To me, you're what my Dad used to call a "decent sort". Keep positive and keep posting.

Best,

Dave

[Screwdriver]

can relate to that, but take care that you don't go off at a million miles an hour, do loads, then at some point (days/weeks/months) into the future you pause for breath...and fall over. There are some terms that cover this, it could even be PTSD after what you've been through, but it always gets you once the crisis has passed and you think you're ready to press cruise control.

I'm not trying to put a dampener on anything, enjoy it, just go steady and pace yourself back to normal life.

No you're dead right. In fact I txted the guys and gals (all twenty somethings) to call the whole thing off. Quite a few are next door for "dnd" anyway and neither of those d's is really my thing at all!

This bonfire is just for me. It was the right call no doubt abut it. It is in many ways just what I need. Some quiet head space with my new best friend. Me!

Thanks for reminding me to stop and think.

[Potter]

Thanks for reminding me to stop and think.

I might be wrong, I know nothing about your particular malady.

I think the psychology could be the same though.
I went through a prolonged challenging experience and then thought it was over, so I rushed off to try and make up for lost time, hurtled head first into everything and became very busy. Then just as I thought everything was back to normal I had a big mental crash and couldn't understand why.

It was like I had a huge burst of enthusiasm that only got me so far, in hindsight I wish I'd have gone a bit steadier and perhaps expected a few bad days here and there rather than just expecting to be back flying along after such a prolonged bout of not being right.
I'm sure there is a medical term for a mental dead cat bounce.

[636mick]

All the very best mate.
Mick

[crust]

Like others I'm not interested in the political ming mong trolling so haven't really registered the Deadpool thing. You can be argumentitive but so are a lot of the posters in here.

So pleased to read that you've had a breakthrough at last and that it seems to be a proper turnaround, fingers crossed for you. I agree with Potter, you've regained control of the rest of your life, make it a long one, treat it as a marathon not a sprint. Good luck.

[Nordboy]

Best of luck going forward, as has already been said, take your time, find your groove and take things one day at a time. Small gains.

If you try and get too much done in a short period of time, you could be setting yourself up for disappointment.

Keep posting and updating as well, it may be your blog, but loads of us have been hanging about these forums for far too long and genuinely like to hear about stuff.

[Rockburner]

A lot to take on, but you're still here, your still talking, so keep remembering that there's always that.

Fingers crossed the oxygen keeps flowing!

Best of luck!

[Screwdriver]

I went through a prolonged challenging experience and then thought it was over, so I rushed off to try and make up for lost time, hurtled head first into everything and became very busy. Then just as I thought everything was back to normal I had a big mental crash and couldn't understand why.

If you try and get too much done in a short period of time, you could be setting yourself up for disappointment.

Burnout was one of the first things to occur to me also. The sheer amount of energy I have right now is, well, it really is moped/Fireblade. That is literally the proportional difference in my current capacity to do stuff.

It is fantastically intoxicating. I cannot believe what I was able to do yesterday and today, things just keep getting done. I will slow down and maybe post a thread which is mostly about storage systems with 3d printing widgets.

For the past few decades I have built up a hoard of stuff and it has been gathering slowly filling up my house/home/garages waiting for me to get around to it.

So I am listening and it sounds like good advice too. The candle that burns twice as bright burns half as long.

[rodbargee]

Great to see you back "up' here after a long break. sounding so much better than I remember. < goes off to look in the shed>

[Buckaroo]

Best of luck to the three of you

The treatment that's available these days is a ray of light in an otherwise dark place.

I've known two people with MS who, once the diagnosis and medication was sorted, led / lead great lives. Not saying it's easy for them at all,but the difference between pre and post treatment is night and day.

Enjoy your energy boost!

My best wishes to you.

[gremlin]

Great news. Long may the recovery last.

[Asian Boss]

Great news. Well, bad initial news but good news on the treatment. Fingers crossed going forwards.

I've always enjoyed your posts; and learned a lot from many of them.

Much respect. Much love.

[McSatan]

Yay for you! A little tip that might help in the battle for any future treatment. Do an SAR (subject access request, you'll be able to find the link on the hospital website) and specifically request *all* of the notes & radiology (images and records) that the hospital that treated you hold. You'll need to do this for each individual trust if it was different hospitals. They have to provide you with this within 30 days (my last part time job before completely retiring was Corporate Governance in the NHS) of acknowledging your request, it'll get sent in PDF format, and a link to the radiology site where you can download the images.

It's handy have these records for any future conversations, you'll see exactly what the specialists have diagnosed/written, their names/dates any recommendations for drugs and so on rather than trying to have to dredge things up from memory. NB, this is hospitals only, GPs are a completely different system.

Keep feeling on top of the world!

[Screwdriver]

Yay for you! A little tip that might help in the battle for any future treatment. Do an SAR (subject access request, you'll be able to find the link on the hospital website) and specifically request *all* of the notes & radiology (images and records) that the hospital that treated you hold. You'll need to do this for each individual trust if it was different hospitals. They have to provide you with this within 30 days (my last part time job before completely retiring was Corporate Governance in the NHS) of acknowledging your request, it'll get sent in PDF format, and a link to the radiology site where you can download the images.

It's handy have these records for any future conversations, you'll see exactly what the specialists have diagnosed/written, their names/dates any recommendations for drugs and so on rather than trying to have to dredge things up from memory. NB, this is hospitals only, GPs are a completely different system.

Keep feeling on top of the world!

Damn that sounds like a great idea. I have tried something similar before but got nowhere. There have been multiple occasions over the years where my scans have been lost or the consultant so busy and so much time passes between appointments, cancellations, delays, they need another scan and the cycle begins again. That happened many times, over many years...

[asmethurst99]

Glad to hear all this …you’re spannering threads are always interesting-

[David]

All the very best mate.
Mick

I cannot do any better than the sentiment behind that....good luck and keep going!

[Wossname]

Welcome back Screwdriver, I'm glad to hear something is working for you

What you have taken sounds similar to the effects of steroids, be careful if that also means you'll get a similar crash.

It's good to see you're back on here although not with the news anyone wants to hear. Just for info - methylprednisolone IS a steroid, just like all prednisolone derivatives, so the above is relevant.

And I see you typed your opening post at 2am, when most of us are safely tucked up in bed, preparing for whatever tomorrow brings. You need to take care of the new Screwd, and that means sleep is necessary, not just a good idea.

Best wishes to you anyway.

Another Dave